Brain Tumor Thursday

I host profiles of people with brain tumors every Thursday.  People who have brain tumors fill out the following template:

I hope….

I wish…

I dream…

I am (be)…

* Optional:

3 things about themselves; diagnosis and treatment; favorite quote; photo(s)

You can read the archived posts here:

Here are links to website that offer information, support, and forums for patients and their families.  Please add any useful one you know of in the comments and I will add them to the list.  Use the hash tags #BTSM and #braintumorthursday on Twitter to find a great community.

40 thoughts on “Brain Tumor Thursday

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  4. Oh My! I am so glad you came by and “like” my blog because it lead me here, to yours. I’m not sure if you saw that my mother has been dealing with brain tumors for three years. I so look forward to reading more here! If you didn’t see the post it begins with “Brain, Storm” on my blog. I will be following!

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  5. Terri, I am so glad we connected. I am so sorry to hear your mother has brain tumors. I have yet had a chance to read your post, “Brain, Storm” but I am looking forward to reading it. I would love to chat with you about your experience. It has been very hard on me and I feel like I am detaching from my mom in preparation for her death. I need to call her, right now! It is difficult to communicate with her now. She talks very softly and some days are better than others. I have written a lot about her. I wish I could go back in time and pay more attention to her stories, wisdom, humor, and give her lots of hugs. Do stay in touch. So nice to meet you Terri.

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  9. I hope…. That in life, I will touch many people hearts and help to make a difference in someones life.

    I wish… That someone will find a cure for cancer and be able to detect it early on in life.

    I dream…. To open my own camp for children and families with children suffering from brain tumors and epilepsy.

    I am… A lover. A person who’s life goal is to help people and to make not so good situations better.

    I am a 24 year old who needs to make a difference. I was diagnosed with a pituitary tumor when I was 20 years old, one that was treated with medications for about 3.5 years. my tumor effected everythig; my mood, my life, my dreams And ambitions. It consumed me and made me a completely different person. In March of this year, I was no longer responding to medications and sought out a neurologist to find out my next option. I had two MRIs in 3 weeks in which my tumor trippled in size. I was referred to a neuro surgeon and the following week was in surgery. Luckily for me I did not have to have a craniotomy. My surgery was done all through my nose ( endoscopic skull base surgery) at New York Presbyterian hospital by dr. Theodore Schwartz. I had a few complications. Learned that I was severely allergic to the anesthetic, as well as morphine, and ended up with a cerebral spinal fluid leak at my surgical site as well as where they had done an epidural. I was in a coma for almost a full day where I was in the ICU and then moved to the neuro unit. A week after my surgery I had to go for a blood patch to fix the leaks, which landed me on bed rest for a month and a 1/2. While on bed rest, I decided to start my own non profit organization called ” If I Only Had A Brain Foundation.” My goals with the foundation are to open a summer camp for children with brain tumors and epilepsy that is focused around art, music and sports ; all with theraputic techniques involved. I am holding my first silent auction and benefit dinner September 16th at the Olde Mill Inn. Basking Ridge NJ. All are welcomed. Tickets are 85$ please email me if you are interested And would like to share your story! All of this years proceeds will be donated to Dr. Schwartz’s Brain Tumor and Epilepsy research and clinical development fund! Help me help others like us!!

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  11. Hi i am Maria from Cyprus and i have brain Tumour oligodendroglioma grade 11 since 2007.The only treatment that i hat was Gamma Knife Radiosurgery.Six months ago i had MRI and there was some changes but my Dr said to wach and wait for know .So i wait.

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    • Hi Maria,
      Did you get my last reply? If not, would you like to submit your profile for Brain Tumor Thursday? Email me at memomuse@gmail.com if you need the template again. I believe the template is on this page where we are commenting.
      I can give you a short version here:
      Fill in the blank:
      I hope…
      I wish…
      I dream…
      I am (be)…
      *Optional*
      Your diagnosis and treatment
      3 things about yourself
      photos
      I am looking forward to reading and sharing your profile.

      Like

  12. Hi Maria, Thank you for commenting. Would you like to share your profile this Thursday? The template for sharing your profile is in this page. Waiting must be very hard. I think you are so brave. The gamma knife seems like a strange name. What does “oligodendroglioma grade 11 ” mean? I am not familiar with the medical terminology? To be honest, I don’t even know the type of tumor my own mother has. I send you my prayers and thoughts. You are beautiful, brave, wonderful, and strong.

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  19. I’m really impressed with your writing skills as well as with the layout on your blog. Is this a paid theme or did you customize it yourself? Anyway keep up the excellent quality writing, its rare to see a great blog like this one these days.. ddbagfeeddac

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