On Thursdays, I profile brain tumor survivors. If you would to lean more about this, read Brain Tumor Thursday.
It is my pleasure to introduce you to John and his story.
To one day not have to “act” normal, but just be. To be able to live my life the way I lived it before my diagnosis and not have the thought of my own mortality be at the forefront of my daily life; not have so much uncertainty as there is now in my life; not have to live my life one MRI-cycle at a time; and not have to second guess all my actions and ask myself, “Am I only doing this because I may not get a chance to do it again?”
I hope to finally do that cross-country trip I’ve wanted to do since I read On the Road, to finally go back to Cusco and visit Machu Picchu, and to finally do the century ride from Orange County to San Diego I’ve planned since 2008.
That a cure, not a treatment, but a cure will be found not only for curing brain tumors, but all cancers. I wish that once this cure is found, that all will have access, not just the opportunity, but actual access to it no matter who they are and where they come from.
I wish for a day where we won’t need #BTSM, #BCSM, #cancersucks, #scanxiety, or #BrainTumorThursday.
On a more personal level, I wish I didn’t have to put my family through this, particularly my folks, Mom and Dad. They’ve been through so much and have faced so many challenges in their lives, so I wish for that day where they won’t have to worry about me anymore.
About that special someone who I will come across randomly, of which we will become great friends because she gets and finds my terrible humor “amusing.” I dream of that dedication and passion we will develop that only two people who truly love each other develops. I dream of our first child, a girl named Isolde who is inquisitive, independent, passionate, and kind and of course a great big sister to her little brother Rand, and little sister Dagny. I dream of my three children growing up to be passionate about a cause, to be compassionate of others, to think freely for themselves, to never stop learning, and to overall be decent human beings.
I dream of the milestones they will reach, graduation from kindergarten, then 6th grade, middle school, high school, college and the rite of passage we all go through. I also dream of the little bumps along the road they will face of which their mom and I will be there for them to help guide and steer them to come to a solution. All in all, I dream to grow “old” and to see my loved ones grow up before my eyes. It is all but a dream though…
I am (be)…
Just me, someone who’s doing my best to unravel the mystery of this so-called life.
3 things about me…
—I was an archaeologist
—Have been to Cusco twice, but never to Machu Picchu
—I loved The Fountain Head, but threw Atlas Shrugged across the room several times…
Diagnosis and Treatment
February 9, 2011: Lesion in medial right temporal parietal lobe found from CT scan, confirmed by MRI
February 15, 2011: Stereotactic Needle Brain Biopsy which diagnosed lesion as a hamartoma.
August 4, 2011: Craniotomy performed which diagnose lesion as grade II oligoastrocytoma
December 6, 2011: Radiation Therapy Session 1 of 28 (180 centigrade of radiation per session, 5,040 centigrade total)
January 18, 2012: Radiation Therapy Session 28 of 28
Current: Ongoing evaluations for recurring “episodes”
“Walk on road. Walk left side, safe. Walk right side, safe. Walk middle, sooner or later, get squish just like grape…” – Mr. Miyagi
“Do or do not. There is no try.” – Master Yoda